tag:blogger.com,1999:blog-626820356307919755.post6177612279817505633..comments2024-03-22T03:09:35.026-07:00Comments on Greatly Blessed: Limb Differences: What is it like to have a child with a prosthetic or AFO?grtlyblesdhttp://www.blogger.com/profile/18386260509307925901noreply@blogger.comBlogger37125tag:blogger.com,1999:blog-626820356307919755.post-22168402637370594802014-10-17T11:53:22.064-07:002014-10-17T11:53:22.064-07:00We love our prosthetist. He takes good care of my...We love our prosthetist. He takes good care of my girls. grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-69569033972312094972014-10-14T16:16:59.456-07:002014-10-14T16:16:59.456-07:00Prosthetic limbs can change your life. They can al...Prosthetic limbs can change your life. They can allow you to lead a normal life. You can do all normal activities, with just a little bit of adjustment. <br /><br /><a href="http://www.alleghenyoandp.com/" rel="nofollow"> http://www.alleghenyoandp.com/</a>leachmark707https://www.blogger.com/profile/17577310973536671845noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-26829382469378415152014-02-18T10:28:04.465-08:002014-02-18T10:28:04.465-08:00Thank you, Heather! :) We were pursuing foster a...Thank you, Heather! :) We were pursuing foster adoption when we found Hannah. It's fascinating to me how every adoption story is different and beautiful. grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-54552342841454970412014-02-18T07:03:04.892-08:002014-02-18T07:03:04.892-08:00Absolutely beautiful to see those smiles and joy o...Absolutely beautiful to see those smiles and joy on their faces and KNOW that they are happy and loved! My husband and I have two adopted children from a domestic adoption, high risk, that was here and our "beautiful story". Thank you for your candid honesty and encouragement for so many parents who consider adoption from overseas and showing that it can be amazing, and not about any disabilities but the children. :)<br />Blessings to you and your beautiful family!<br />~Heather Heather@TheWelcomingHouseBloghttps://www.blogger.com/profile/04237427166582006536noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-81086995175897838822014-02-17T11:45:49.307-08:002014-02-17T11:45:49.307-08:00Thanks for hosting, Jill! :) Thanks for hosting, Jill! :) grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-75052370197002996622014-02-17T11:45:16.390-08:002014-02-17T11:45:16.390-08:00It's actually kind of amazing how we're al...It's actually kind of amazing how we're all different. Good thing you sew, eh? :) grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-8778525359811997832014-02-17T04:53:43.280-08:002014-02-17T04:53:43.280-08:00You are a wonderful woman with a beautiful family....You are a wonderful woman with a beautiful family.<br /><br />Thank you for stopping by the Thoughtful Spot Weekly Blog Hop this week. We hope to see you drop by our neck of the woods next week!Jillhttp://enchantedhomeschoolingmom.orgnoreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-74083988801954656862014-02-15T13:37:23.985-08:002014-02-15T13:37:23.985-08:00There's a line from Incredibles, "Normal?...There's a line from Incredibles, "Normal? What does anyone in this family know about normal?" that gets used around here often. ;) grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-36439378460252022662014-02-15T00:04:52.113-08:002014-02-15T00:04:52.113-08:00LOL! Yes, we have clothing issues, too! Two with...LOL! Yes, we have clothing issues, too! Two with SMOs, one with a big head, narrow shoulders, short arms. A supposedly "regular" kid with a very tiny waist and long legs. Another with no waist, extra short legs and an extra wide rib cage. My last has a "slight" difference in leg length, but it's about 1/4" and really shows, IMO.Khttps://www.blogger.com/profile/07033823622722768455noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-57100644529569511032014-02-13T14:31:44.369-08:002014-02-13T14:31:44.369-08:00I joke that the only thing "Normal" in m...I joke that the only thing "Normal" in my house is the setting on the dryer!Meg Falcianihttps://www.blogger.com/profile/01624745402177674937noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-620979418592029442014-02-13T12:23:21.475-08:002014-02-13T12:23:21.475-08:00As Prospective Adoptive Parents research various s...As Prospective Adoptive Parents research various special needs, what they really want to know is, "What would it be like to parent a child like this?" This is what I've hoped to answer. Not to complain that my girls are different, but to explain that despite being "some assembly required" they're really not that different after all. :) grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-8051150926658248512014-02-13T12:01:54.428-08:002014-02-13T12:01:54.428-08:00Very interesting. I had never thought of all the s...Very interesting. I had never thought of all the struggles involved in having children with an amputated leg. Thanks for sharingAndrea@thedistractedhousewifehttp://thedistractedhousewife.comnoreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-27031042788758566312014-02-12T15:50:31.285-08:002014-02-12T15:50:31.285-08:00You really get where I'm coming from, then. I...You really get where I'm coming from, then. It's amazing what becomes "normal" within a family culture. :) grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-30743330145161615972014-02-12T14:52:33.543-08:002014-02-12T14:52:33.543-08:00Orthotics...we have several sets of them. In our h...Orthotics...we have several sets of them. In our house, "sockshoesorthotics" is said so often it's become one word. One has custom cast foot-only, two have above the ankle SMOs, and one kiddo has one SMO and one SMO-in-a-DAFO. I hate trying to get shoes...and they have to be replaced often because the orthotics shred the insides. My DD will tell you she's the only "normal" one in our family because she doesn't wear orthotics. Note that "normal" is relative because she said this as she was hooking up the adapter for her feeding tube and plugging into her breakfast...LOL She's the one I have to watch clothes for -- trying to find things with the proper "waistline" is rough. She can't wear anything with a raised/empire waist, because then it rubs/catches on her tube. I had bought her some waist-seam-at-the-navel dresses that I thought would last extra-long by letting her wear them as tunics, until then the seam rose accordingly and caught on her tube. She's too skinny to comfortably wear a lot of skirts/pants, and anything one-piece has to be able to either slit the side seam to run the line out or be able to run it out the armpit (sleeveless/cap sleeves are our friend). It wasn't "easy," but it definitely was easier when she was a toddler/preschooler -- before she got an opinion on what she wanted to wear!!Meg Falcianihttps://www.blogger.com/profile/01624745402177674937noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-41769465258218026332014-02-12T14:43:23.435-08:002014-02-12T14:43:23.435-08:00This comment has been removed by the author.Meg Falcianihttps://www.blogger.com/profile/01624745402177674937noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-81933502474708339122014-02-12T12:01:23.360-08:002014-02-12T12:01:23.360-08:00Thank you! And please tell your husband thanks, a...Thank you! And please tell your husband thanks, as well. We love our prosthetist. :) Mr Rick is great with my girls. Best wishes to you as you move through the process (hopefully quickly!). grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-45124854348834035152014-02-12T08:09:14.174-08:002014-02-12T08:09:14.174-08:00We are in the homestudy/fundraising process of our...We are in the homestudy/fundraising process of our first adoption. My husband is a prosthotist/orthotist and we have always felt God's calling to adopt a child with limb difference. We are praying to travel to China early next year to bring our child home :) I am so thankful for your blog and your testimony!! You are a blessing to me as I ride this adoption roller coaster!Amber Kanallakanhttps://www.blogger.com/profile/08728887308561153709noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-55256666307919165482014-02-11T13:21:56.570-08:002014-02-11T13:21:56.570-08:00Thanks for all of your insite!
Thanks for all of your insite!<br />Anonymoushttps://www.blogger.com/profile/05743859677332889903noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-8773470813279504742014-02-11T11:43:20.747-08:002014-02-11T11:43:20.747-08:00Thank you! It would be nice to feel like someone ...Thank you! It would be nice to feel like someone could benefit from all the ways I've done things wrong, lol! :) Your words are an encouragement. I appreciate them. grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-55325405825571111132014-02-11T10:37:15.475-08:002014-02-11T10:37:15.475-08:00I've heard there are waterproof wraps for cast...I've heard there are waterproof wraps for casts, maybe something like that would work for the beach? grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-17738616654246004432014-02-11T07:08:11.807-08:002014-02-11T07:08:11.807-08:00We do have a Shriners near us (Chicago). We went ...We do have a Shriners near us (Chicago). We went shortly after we returned with our daughter from China, but we were not impressed. He just said that he couldn't do anything for her & wrote out a Rx for a lift. We weren't impressed. We have a local limb difference clinic we have been to every 6 mo. We did go to RIAO clinic in Baltimore in Dec to meet w/Dr Standard. He is the one who recommended the rotationplasty. <br /><br />They predict she will be 5'1", so they do not want to stunt her growth in her longer leg.<br /><br />We meet w/our local specialist in April & will discuss with him further about a rotationplasty & see who he would recommend for the surgery.<br /><br />We live near Lake MI & camp often, so we are at the beach often - thus, my concerns about a prosthetic at the beach. It is also a long walk from the parking lot to the beach, so I'm not sure hopping would be an option :) She's light enough now that we can carry her (3 yrs), but I'm thinking when she's 16, she probably will not want her mom/dad to carry to the beach! LOL!Anonymoushttps://www.blogger.com/profile/05743859677332889903noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-57937689417363797752014-02-10T21:07:19.102-08:002014-02-10T21:07:19.102-08:00I think you have a lot to offer on the subject and...I think you have a lot to offer on the subject and shed some light on post adoption issues of all kinds. Not just about Luke but all 3 kids. The experience of medical needs, developmental problems, the dynamics of how the family and marriage take a hit, these are all valid conversations to have! And I think you have lots to say so I look forward to you digging in to give us your opinions! You may just inspire others!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-2858960307629573212014-02-10T20:52:25.513-08:002014-02-10T20:52:25.513-08:00I've thought about a 2 at once post. Before w...I've thought about a 2 at once post. Before we did it, I was all in favor of the idea, but now, not so much. I'll keep chewing on the idea, and hopefully sort out my thoughts into something coherent soon. grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-71310407033553601762014-02-10T19:30:39.034-08:002014-02-10T19:30:39.034-08:00I would love to see your write a entry on SN simul...I would love to see your write a entry on SN simultaneous adoption and how you decided to bring 2 home and how you keep going with Luke's special issues. I think it would help so many people to hear the struggles and triumphs you have had or still are having. Adoption is a huge step and a look into your world I feel would help others decide to adopt, adopt 2 at once or take the plunge and adopt again! Advice and info from a seasoned Mom! Which is what you are! :-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-626820356307919755.post-39265762179415728092014-02-10T17:38:40.223-08:002014-02-10T17:38:40.223-08:00Thank you! :)Thank you! :)grtlyblesdhttps://www.blogger.com/profile/18386260509307925901noreply@blogger.com