Today, I have the privilege of sharing another of the sweet children I got to meet in Beijing earlier this month.
Remember this cute picture of Aury resting with one of his friends in my hotel room? Well today, I want to share more about that friend, whose advocacy name is Tristan!
Tristan and his advocate, Jennifer, after the "taking care of Mama" exercise.
Here's what Jennifer has to say about Tristian:
Tristan is a sweet 9 year old boy with Joubert's Syndrome that affects his gait, balance and some functionality of his gross motor skills. He has the most gorgeous golden brown eyes that show the depth of his personality. He is a quiet child that often goes into his own world, sometimes fixated on one items for an hour or more. His temperament is overall gentle but after some pushing, there was a hint of a stubborn streak when he was asked to give up an item he was using. He is closer to 6 or 7 physically and possibly even younger in cognitive ability. His ability to sit still during long speeches and car rides is impressive!
He did the cutest performance of signing, singing and choreography during our visit to Beijing. He also did a wonderful exercise titled "taking care of Mama" which showed his compassion and willingness to please. The only time his physical ability was truly taxed was after walking around the zoo for a few hours. He stumbled more than once and finally was placed in a wheelchair for a break. The other noticeable signs of his syndrome include some minimal jerky eye movements and speech delay for which he started therapy and progressed well.
Aury and Tristan
Tristan's smile is beautiful and this little boy deserves a forever home where he can learn within his capabilities and thrive into adulthood.
If you are interested in adopting Aury or Tristan, they are listed with Madison Adoption Associates. Please share this post so Tristan's family can find him. Thank you!
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What a precious boy! Praying he finds a forever family soon!
ReplyDeleteThank you! He seemed really sweet. :)
DeleteWhat a sweet boy. We brought our daughter home from China in January and upon arriving home received a surprising diagnosis of Joubert Syndrome. A lot of how you describe Tristan is also similar to my daughter. Joubert Syndrome is rare and I would like to be available to anybody interested in Tristan with questions on the Syndrome. He seems like he is doing well!
ReplyDeleteI know it's not fun to get a surprise dx after coming home. I hope your dd is doing well! Thank you for being available to talk with interested families! What's the best way for them to get in touch with you?
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ReplyDeleteYou have a beautiful family. :)
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