A large family, homeschooling, adoption, special needs, whatever strikes my fancy, sort of blog.
Sunday, April 6, 2014
I realized something. The adoption process, as frustrating as it is, was good preparation for me. In some ways, this time is similar to our waiting periods for Hannah, Katie, and Luke. At the UCSF appointment in February, a syndrome was mentioned. I turned to Dr. Google, and I can see it. Luke has a lot of the symptoms.
Like during the adoption, I turn to the internet to seek out any information I can find. If this is really It, then there's a research organization, a parent support network, etc. It's even on Social Security's list of compassionate allowances, so if we chose to seek SSI for him at some point, the process would be easier with that diagnosis.
Another way this time mimics our adoption waits is that we're depending on other people to do their jobs in a timely manner. And most of the time, there's nothing we can do to make it go even a minute faster. Right now, we wait for the blood and urine test orders to wind their way through the system and result in lab paperwork being mailed to us so we can take Luke in to be poked. Again. (They cringe when they see him. His fat little arms have NO visible veins.)
In the meantime, I'm watching dry videos of research presentations, and tracking down obscure drug names, and bookmarking clinical trials. Not quite like watching Gotcha Day videos on YouTube, but close enough to remind me.
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