Luke recently turned 3 years old, and I thought a birthday would be a good time for an update.
He has seen the GI Doc for his one month follow up visit, and he's gained some weight, so that's great news. We're really happy to avoid the feeding tube.
We had his IEP meeting, but they changed what they were offering at his Transition Meeting in March (a place in the mod/severe SN preschool class) to something totally different (inclusion in a typical classroom at a Head Start), so we're going to have to have another IEP meeting.
His visit with the PM&R folks, resulted in not only referrals for ophthalmology and the neuromuscular doc at Shriners, but also additional referrals for speech, OT and PT, so if we're unable to get the school district to provide any of those, we have the option of taking Luke up to Sacramento for services.
This is Luke's "Zone" so to speak. The baby gym behind him, the beads on the left, and the activity table on the right make up his favorite toys.
The beads belong to Early Intervention, so those will be going after his "graduation ceremony" next month. He likes the noise they make when he swings them back and forth. He will scoot on his back to get closer to this toy.
If we remove 2 of the table legs, he can play with this while seated on the floor. The buttons make music, which he likes. Notice that he still touches things with the back of his hand. The baby gym, I bought because he likes music, but the piano part has broken already. :/ Still, he like batting toys hanging from the arch.
This is a new addition. It's funny, Hannah getting a wheelchair didn't bother me a bit. I saw it as a helpful tool for all day outings or after surgery. The delivery of Luke's wheelchair, however, really bugged me, and I'm not sure why.
His PT refers to it as a Travel Chair. He doesn't use it in the house, I just put him in it for a picture. It's equipped to be anchored to the school bus so he can ride to & from school in it. This sucker is heavy. I can barely get it in and out of my van.
Coming up next, Luke goes in to see the dentist for his regular check up. Luke grinds his teeth horribly, which we've asked about, but there's nothing that can be done at this point. At least they're only baby teeth? He also has a very strange double tooth that seemed a little loose to me recently, so I think we're going to attempt to get an x-ray to see if it has typical roots or not. I'm wondering if he'll need to have it pulled to avoid him choking on it.
The next big, photo worthy event for Luke is his "graduation" from Early Intervention, not that he's mastered any of the goals they had for him, just that he's aged out. I feel pretty much the same way Mr Incredible does about these things, but we'll be having 3 of his 4 therapists here for the occasion.
Assuming we get things straightened out with the school district, Luke will be starting school next month. I picked up a couple new things for him while I was uniform shopping for Samuel and Brianna. I've also started sewing his winter pants really early this year.
His appointment at Shriners with the neuromuscular doctor is set for September. I suppose I should be glad it's only a 2 month wait. When we adopted Hannah, they booked her first appointment several months out. Her surgery, too, although they had a cancellation and got us in a couple months early.
So that's all the latest with Luke!
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